To many of you who don’t know, albinism is a rare group of genetic disorders that cause the skin, hair, or eyes to have little or no color. Albinism is also associated with vision problems. According to the National Organization for Albinism and Hypopigmentation, about 1 in 18,000 to 20,000 people in the United States have a form of albinism.
People with this condition are born this way. Albinism is inherited, it’s not contagious, you can’t “catch” it from someone else.
People are born with albinism because they inherit an albinism gene or genes from their parents. In the most common forms of oculocutaneous albinism, both parents must carry the albinism gene for a child to be born with the condition.
As much as we have access to all kinds of information nowadays, there is still some social disapproval when it comes to seeing people that in one way or another stand out from the crowd. Even though we fight to be unique, we disapprove of those that are born that way. One of these people is Xueli, a Chinese girl who was abandoned right after she was born with this condition. With a lot of people being influenced by what society says, being born with albinism in China is seen as a curse which meant you had no future there. Being left outside an orphanage in China around 16 years ago, Xueli had to wait3 years until she found a loving family.
To her good fortune, Xueli was adopted by a Dutch Abbing family and moved to the Netherlands to live with her new mom and sister. Being an albino girl didn’t stop her from moving forward with her life. Her unique looks opened the door for her into the modeling industry, where she got the chance to collaborate with some of the world’s greatest photographers and be featured in some of the most famous magazines, like Vogue.,
Xueli only has eight to ten percent vision, so her eyes are extremely sensitive to bright light. Because she can’t look at the light directly, you’ll notice that she is photographed with her eyes closed in most photos. Along with one of her photos on Instagram, Xueli shares her experience and tries to raise awareness on albinism and inspire others to embrace their natural beauty.